Support Initiatives for Myotonic Dystrophy

Our mission is specifically dedicated to improving the quality of life of individuals affected by myotonic dystrophy in Europe. The Federation of European Myotonic Dystrophy Associations serves as a support and resource center. By bringing together national associations, we facilitate the dissemination of essential information, promote research, and raise public awareness of this rare genetic disease. We are unwaveringly committed to patients and their families, providing easy access to care and building a network of solidarity across the continent. Visit our gallery below to see how we’re making a meaningful difference.