International Myotonic Dystrophy Awareness Day

Myotonic Dystrophy Awareness: Solutions in Europe

The Federation of European Myotonic Dystrophy Associations works to raise awareness and support the community affected by myotonic dystrophy in Europe. Join us to improve diagnoses, quality of life, and support for patients with DM.

International Myotonic Dystrophy Awareness Day – 15th September!

Euro-DyMA is proud to be part of the worldwide alliance of Myotonic Dystrophy organizations supporting International Myotonic Dystrophy Awareness Day on the 15th of September each year.

Those focused on DM around the world are increasing awareness to aid diagnosis, improve quality of life, provide necessary care, and bring treatments to the global DM community.

The current aims are to improve awareness among clinicians and to encourage engagement in current and upcoming clinical trials. Please join us by spreading the word within your networks!

If you would like to know more or to join the Global Alliance, please view the MDF page or contact us at Euro-DyMA.

On the 15th of September 2024, the Global Alliance for Myotonic Dystrophy Awareness will unite over 60+ organizations from around the globe to mark the fourth annual International Myotonic Dystrophy Awareness Day. This day is dedicated to raising awareness about myotonic dystrophy (DM), a complex and often misunderstood genetic disease that affects thousands of individuals and families worldwide.

This Awareness Day, the Global Alliance for Myotonic Dystrophy Awareness invites individuals, organizations, and policymakers around the world to raise awareness of myotonic dystrophy.

Participate in International Myotonic Dystrophy Awareness Day on September 15 by filling out forms or emailing us!