Myotonic Dystrophy: Support and Resources for Patients in Europe

Explore the latest news and information on Myotonic Dystrophy, brought to you by the Federation of European Myotonic Dystrophy Associations. Our work raises the torch of support for patients affected by Myotonic Dystrophy in Europe by providing a support network, educational resources, and financial support opportunities. Together, we are joining forces to provide quality support and stimulate research in this area. Follow our section to stay up to date on upcoming initiatives and events.

News

Abstract shapes and colors background
  • ENMC workshops to be organized about cognitive issues in DM pediatric population (January 2025) and harmonization of registries (March 2025).
Abstract shapes and colors background
  • Myotonic Dystrophy Foundation (MDF) conference in May 2025)
Abstract shapes and colors background
  • MDF and Euro-DyMA join Pharma’s Day, may 1st, 2025.

© 2024 Federation of European Myotonic Dystrophy Associations