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Sunday, March 26, 2023
Latest:
  • Face-to-Face meeting of support groups in Milan
  • Scientific Advisory Board Meeting
  • International Myotonic Dystrophy Awareness Day today!
  • Update from DM Pharmaceutical Companies open to all!
  • Pharma’s Day 2022
Euro-DyMA

Euro-DyMA

Federation of European Myotonic Dystrophy Associations

Euro-DyMA

Institute of Myology
47-83 boulevard de l’Hôpital
75651 Paris Cedex 13, France

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News

News 

Face-to-Face meeting of support groups in Milan

November 29, 2022November 29, 2022 Peter Ashley 0 Comments

November saw a great meeting of European Myotonic Dystrophy support groups hosted by hugely respected Clinician, Researcher and SAB member,

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News 

Scientific Advisory Board Meeting

November 22, 2022November 22, 2022 Peter Ashley 0 Comments

On Monday our esteemed SAB held this year’s annual meeting to give an update on research and clinical progress in

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News 

International Myotonic Dystrophy Awareness Day today!

September 15, 2022September 15, 2022 Peter Ashley 0 Comments

Over 50 prominent organisations around the world are joining together today to raise awareness of DM. The joint themes this

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News 

Update from DM Pharmaceutical Companies open to all!

June 27, 2022June 27, 2022 Peter Ashley 0 Comments

Join us on Wednesday 29th at 9am CET for updates from Arthex, Avidity, Dyne Therapeutcs and AMO Pharma… Euro-DyMA Pharmas

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News 

Pharma’s Day 2022

June 17, 2022June 17, 2022 Peter Ashley 0 Comments

29th June is our Pharma’s day this year where key pharmaceutical companies present their developments both to each other and

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News 

Euro-DyMA Scientific Advisory Board Meeting

June 17, 2022June 17, 2022 Peter Ashley 0 Comments

We are looking forward to welcoming our esteemed SAB back to discuss Gastroenterology. Gastro, dealing with digestion, is frequently regarded

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News 

A Great Meeting in Brussels!

May 24, 2022May 24, 2022 Peter Ashley 0 Comments

The first face-to-face meeting in over 2 years for Euro-DyMA! May saw us gather in Brussels for a physical meeting

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News 

Myotonic Dystrophy Community Advisory Board (CAB)

January 19, 2022February 11, 2022 Peter Ashley 0 Comments

We are pleased to announce that members of Euro-DyMA are joining with other patient experts to create an independent Myotonic

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News 

International Myotonic Dystrophy Awareness Day Today!

September 15, 2021September 15, 2021 Peter Ashley 0 Comments

We are proud to be part of the Global Alliance of influential DM organisations celebrating the first annual DM Awareness

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News 

Register for 10th June ERN webinar on personal interventions for DM1

June 7, 2021June 11, 2021 Peter Ashley 0 Comments

This seminar will focus on the development of individualized interventions in myotonic dystrophy that take into account the clinical heterogeneity

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