| RESOURCE | EDITOR | DESCRIPTION | LANGUAGE | URL | DATE |
| MyoBase | AFM-Téléthon | A unique Online Public Access Catalogue on Neuromuscular Rare Diseases including more than 3500 documents related to Myotonic dystrophies (“myotonic dystrophy” in search) | Various | Click Here | Ongoing |
| Report | AFM-Téléthon | Avancées dans la Maladie de Steinert – DM1 | French | Click Here | June 2020 |
| Report | AFM-Téléthon | Avancées dans la Maladie de Steinert – DM2 | French | Click Here | June 2020 |
| Database | WHO | World Health Organisation International Clinical Trials Registry Platform. Includes trials from many registries around the world including clinicaltrials.gov | English | Click Here | Ongoing |
| Database | US Nat Library of Medicine | Clinical Trials.gov – US National Library of Medicine database. | English | Click Here | Ongoing |
| Resources | Myotonic | Comprehensive Guidelines, Recommendations and Publications including Consensus-Based Care Guidelines for Myotonic Dystrophy Types 1 & 2 | Various | Click Here | Ongoing |
| Newsletter | AFM-Téléthon | AFM DM Newsletter. Latest issue and all previous issues available from the page. | French | Click Here | Ongoing |
| Report | Spanish Healthcare | Comprehensive guide to DM1 diagnosis and follow-up care (Link on page to English version) | Spanish English | Spanish English | January 2019 |
| Research Information | Euro-DyMA | ReCognitION is an international project to discover novel drugs for the treatment of DM based on the results of the OPTIMISTIC study. Here are links to more information in several languages. | English Italian Danish French German Dutch | English Italian German French Greek Dutch | 2022 |
Euro-DyMA
Federation of European Myotonic Dystrophy Associations