Library

RESOURCEEDITOR DESCRIPTIONLANGUAGEURLDATE
MyoBaseAFM-Téléthon A unique Online Public Access Catalogue on Neuromuscular Rare Diseases including more than 3500 documents related to Myotonic dystrophies (“myotonic dystrophy” in search)Various Click HereOngoing
ReportAFM-TéléthonAvancées dans la Maladie de Steinert – DM1FrenchClick HereJune 2020
ReportAFM-TéléthonAvancées dans la Maladie de Steinert – DM2FrenchClick HereJune 2020
DatabaseWHOWorld Health Organisation International Clinical Trials Registry Platform. Includes trials from many registries around the world including clinicaltrials.govEnglishClick HereOngoing
DatabaseUS Nat Library of MedicineClinical Trials.gov – US National Library of Medicine database.EnglishClick HereOngoing
ResourcesMyotonicComprehensive Guidelines, Recommendations and Publications including Consensus-Based Care Guidelines for Myotonic Dystrophy Types 1 & 2VariousClick HereOngoing
Newsletter AFM-Téléthon AFM DM Newsletter. Latest issue and all previous issues available from the page.FrenchClick HereOngoing
ReportSpanish HealthcareComprehensive guide to DM1 diagnosis and follow-up care
(Link on page to English version)
Spanish
English
Spanish
English
January 2019
Research InformationEuro-DyMAReCognitION is an international project to discover novel drugs for the treatment of DM based on the results of the OPTIMISTIC study.
Here are links to more information in several languages.
English
Italian
Danish
French
German
Dutch
English
Italian
German
French
Greek
Dutch
2022