Library

RESOURCE	EDITOR	DESCRIPTION	LANGUAGE	URL	DATE
MyoBase	AFM-Téléthon	A unique Online Public Access Catalogue on Neuromuscular Rare Diseases including more than 3500 documents related to Myotonic dystrophies (“myotonic dystrophy” in search)	Various	Click Here	Ongoing
Report	AFM-Téléthon	Avancées dans la Maladie de Steinert – DM1	French	Click Here	June 2024
Report	AFM-Téléthon	Avancées dans la Maladie de Steinert – DM2	French	Click Here	June 2024
Database	WHO	World Health Organisation International Clinical Trials Registry Platform. Includes trials from many registries around the world including clinicaltrials.gov	English	Click Here	Ongoing
Database	US Nat Library of Medicine	Clinical Trials.gov – US National Library of Medicine database.	English	Click Here	Ongoing
Resources	Myotonic	Comprehensive Guidelines, Recommendations and Publications including Consensus-Based Care Guidelines for Myotonic Dystrophy Types 1 & 2	Various	Click Here	Ongoing
Newsletter	AFM-Téléthon	AFM DM Newsletter. Latest issue and all previous issues available from the page.	French	Click Here	Ongoing
Report	Spanish Healthcare	Comprehensive guide to DM1 diagnosis and follow-up care (Link on page to English version)	Spanish English	Spanish English	January 2019
Research Information	Euro-DyMA	ReCognitION is an international project to discover novel drugs for the treatment of DM based on the results of the OPTIMISTIC study. Here are links to more information in several languages.	English Italian Danish French German Dutch	English Italian German French Greek Dutch	2022