| RESOURCE | EDITOR | DESCRIPTION | LANGUAGE | URL | DATE |
| MyoBase | AFM-Téléthon | A unique Online Public Access Catalogue on Neuromuscular Rare Diseases including more than 3500 documents related to Myotonic dystrophies. | Various | Click Here | Ongoing |
| Report | AFM-Téléthon | Avancées dans la Maladie de Steinert – DM1 | French | Click Here | June 2020 |
| Report | AFM-Téléthon | Avancées dans la Maladie de Steinert – DM2 | French | Click Here | June 2020 |
| Database | WHO | World Health Organisation International Clinical Trials Registry Platform. Includes trials from many registries around the world including clinicaltrials.gov | English | Click Here | Ongoing |
| Database | US Nat Library of Medicine | Clinical Trials.gov – US National Library of Medicine database. | English | Click Here | Ongoing |
| Resources | Myotonic | Comprehensive Guidelines, Recommendations and Publications including Consensus-Based Care Guidelines for Myotonic Dystrophy Types 1 & 2 | Various | Click Here | Ongoing |
Euro-DyMA
Federation of European Myotonic Dystrophy Associations