Library

RESOURCEEDITOR DESCRIPTIONLANGUAGEURLDATE
MyoBaseAFM-Téléthon A unique Online Public Access Catalogue on Neuromuscular Rare Diseases including more than 3500 documents related to Myotonic dystrophies.Various Click HereOngoing
ReportAFM-TéléthonAvancées dans la Maladie de Steinert – DM1FrenchClick HereJune 2020
ReportAFM-TéléthonAvancées dans la Maladie de Steinert – DM2FrenchClick HereJune 2020
DatabaseWHOWorld Health Organisation International Clinical Trials Registry Platform. Includes trials from many registries around the world including clinicaltrials.govEnglishClick HereOngoing
DatabaseUS Nat Library of MedicineClinical Trials.gov – US National Library of Medicine database.EnglishClick HereOngoing
ResourcesMyotonicComprehensive Guidelines, Recommendations and Publications including Consensus-Based Care Guidelines for Myotonic Dystrophy Types 1 & 2VariousClick HereOngoing