November saw a great meeting of European Myotonic Dystrophy support groups hosted by hugely respected Clinician, Researcher and SAB member, Giovanni Meola.
Our regular online meetings keep things moving but meeting in person brings so much more.
We were joined by members of other countries via Zoom, together with proposed new member BENE from the Basque region of Spain and guest presenter Jorg Van Gent from MD Nederland.
This is an exciting time for DM. There were interesting discussions over 2 days, including reviews of upcoming clinical trials, notable recently published research, our own assessments of best practice in community support and plans for SAB focus going forward.
Our sincere thanks to Giovanni and Paola Meola for their excellent hospitality!